AT just two years old Max Jones has already been through more than some people will experience in a lifetime.
The Whaley Bridge toddler has a rare genetic disorder called Beckwith Weidennan Syndrome and was born with his bowel on the outside of his body.
He was just two days old when he had his first life- saving operation. Since then, he has undergone a further nine operations and spent much of his life in hospital.
Now two friends of Max’s mum Rachael – Jane Marchington and Megan Riley – are organising a charity wedding/prom fair to raise money for Manchester Royal Children’s Hospital (MRCH), where Max has been cared for over the past two years.
The event takes place on Sunday, May 27 at Whaley Bridge bowling club and will feature over 25 stands inside the bowling club, in two marquees, and also outside in the car park.
A bridal fashion show will take place as well as a demonstration of bridal hair and make-up. There will also be a raffle on the day with a big bridal package up for grabs.
In the evening, there will be live music from Alan Longdon and Adam, Missing Person and Beechombers at the White Horse, Whaley Bridge, with another raffle where prizes up for grabs include a child’s bike, a signed shirt from Manchester City FC and a signed item from Liverpool FC. Raffle tickets are on sale now at Sammie’s, Whaley Bridge, Cavendish Bridal, Hayfield or on the day.
Jane and Megan said: “We would like to raise money for MRCH as they have been wonderful with Max.
“He has been in and out of Manchester Royal Children’s Hospital so often the nurses, doctors and staff in the hospital shop all know him.”
And Max’s mum Rachael added: “Beckwith Weidemann Syndrome resulted in Max having a larger than normal tongue which was blocking his airway and causing his breathing difficulties.
“At two months old the consultants advised that Max would require a tracheotomy to help him breathe on his own. The hospital staff were incredibly supportive and spent a great deal of time helping us to learn how to care for Max so that we could take him home.
“Max’s tracheotomy meant that he was not been able to make a sound. Following surgery to reduce the size of Max’s tongue, his tracheotomy was successfully removed shortly before his second birthday and we got to hear his amazing little voice.
“Max has had his ups and downs but he is an incredibly strong and happy little boy.
“A simple thank-you has never seemed enough to thank the children’s hospital for all they have done and continue to do for Max.”
Last year Rachael took part in the Great Manchester Run, raising £1,200 for the hospital.
The wedding/prom fair runs from 1pm to 4pm and all proceeds will be donated to MRCH.