Two friends, one with epilepsy and one with an undiagnosed condition have formed a new support group to break down the secrecy surrounding the illness.
Tom Prince, 23, from Buxton has Cerebral Palsy and was diagnosed with epilepsy when he was six and this has knocked his confidence to the point where he found it difficult to go outside.
Tom said:“It is scary going outside knowing you may have a seizure and people will look at you and not understand what is going on - it is not something I can control.”
Epilepsy is a condition that affects the brain and causes repeated seizures and it is estimated to affect more than 500,000 people in the UK. Friend Shaun Lindsey, also from Buxton, has been tested for the condition and is currently waiting his results. He said: “There is a lot people don’t know about epilepsy and we want to reach out to those people who live with the condition or care for someone who does.”
Tom added: “My safety comes first and I need to know whatever situation I am in that I will be safe.
“It took my a long time to balance that with having a life and I don’t want other people to feel trapped in their homes like I was.”
The free and informal support group will have its first meeting on Monday, June 27 at Buxton 4 Youth Centre, between 1.30 and 2.30pm. For more information contact Shaun on 07495751969.