Raising awareness for Whaley Bridge tot with rare illness

Isaac Royale, pictured with his dad Lee, launches a sponsored walk in Whaley Bridge Park, which was organised by Sunshine Day Nursery in support of his familys fundraising campaign to create a new medical database.

Isaac Royale, pictured with his dad Lee, launches a sponsored walk in Whaley Bridge Park, which was organised by Sunshine Day Nursery in support of his familys fundraising campaign to create a new medical database.

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The family of a Whaley Bridge toddler with a rare medical condition are fundraising to help create a new national medical database.

Two-year-old Isaac Royale was diagnosed with Langerhans Cell Histiocytosis (LCH) in April.

Mum Sara Pettett will be among members of seven families taking part in a relay from John O’ Groats to Land’s End to help raise money for the register, which will assist in helping to see what treatments work for patients.

She said: “Isaac has always been an active little boy and we had no idea he was poorly until he landed on his arm when bouncing on the settee in March this year.

“We took him for an X-ray at the local hospital and they picked up an abnormality.”

After several hospital visits, referrals and tests, including an MRI and a bone biopsy, Isaac was diagnosed with LCH.

LCH is an unusual condition. It has some characteristics of cancer, but unlike almost every other cancer, it may spontaneously resolve in some patients while being life threatening in others.

With LCH, cells, which are normally found in the skin, may spread to many organs and damage them.

Sara said: “Isaac has tumours on his arms and is in a lot of pain, but he is still our bubbly little boy. It just means we have to be careful and he can’t go on bouncy castles or in soft play.

“When I found out I felt helpless and wanted to get as much information as possible, but no-one had any answers of past patient treatment”

Sara met with other families at a support group and came up with the cross-country event, which detoured through Whaley Bridge on Tuesday, in a bid to raise £20,000 for the registry.

Around £11,000 has so far been collected.

To donate, visit www.justgiving.com/fundraising/sara-pettett.